Welcome to livingwithaplasticanemia.com!


My name is James Ilari and I was diagnosed with Severe Aplastic Anemia (SAA) at age 24.  I have decided to create this website to raise awareness and provide information about the disease, the importance of giving blood and becoming a bone marrow/stem cell donor, and finally to tell my story in the hopes it will help others battling the same illness.




The Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a leading funder of research into bone marrow
failure diseases in Canada. Their volunteer-run organization supports patients and caregivers across the country who are
living with aplastic anemia, myelodysplastic syndrome (also called MDS or myelodysplasia) and paroxysmal nocturnal hemoglobinuria (PNH).

Check out AAMAC's upcoming events in the section above.


My Blood Counts PDF Print E-mail
Written by James Ilari   
Sunday, 20 January 2013 12:03

Hi Everyone... It has been just over two years since my last post and I sincerely apologize about that.  I know may people have emailed me for updates and have many questions about how life is after ATG treatment so I've decided to keep this blog going and continue to share my experiences.  If it helps even one person I believe it's worth it.


A lot of the questions I've been receiving lately are about my blood counts... Have they continued to fluctuate?, how are they now?, how were they after ATG?, etc...  I created a chart (below) that outlines my counts from the day I began ATG to now.  Just to give some background info... Following my ATG treatment I was placed on 250mg of Cyclosporine twice daily and I was tapered off every couple of months by 25mg.  Eventually I was removed from Cyclosporine all together as indicted below.  In January 2012 I developed an pneumonia which stayed with me for months.  My counts, more specifically my platelets, dropped drastically.  Since that time they have nevery really recovered and Cyclosporine was prescribed once again.  I am currently on 150mg twice daily.


blood counts